This past week, Lilly had an appt with a new GI doctor here in hartford. A negative about moving, is trying to find new doctors, but we figured we would go back to where it all started, Connecticut Children's hospital. I was worried about what he would say about Lilly, since our last doctor was pretty conservative and didn't get overly concerned about Lilly's weight. He was pretty nice and we liked him but as I expected he wanted to change some things up. Lilly has been taking 2 meds for her reflux and 1 for her appetite. He wanted to stop her Nexium since it could have long term consequences for prolonged use. I was hesitant but know that we were going to have to try soon. We've just been doing really well, and I haven't wanted to rock the boat. So we decided to stop that one and see how she does. We are going to try to cycle the appetite med so that the is weened a little from it. He was pleased with what he saw from what he expected from reading her diagnosis from the other doctor. He was expecting more of a bony child and was pleased to see that she does have some meat on her little bones.
She did weigh 25.7 lbs (right under 5%)
almost 36 inches tall (15%)
This is how they lay on mommy to watch tv while Lilly is sleeping.
Since we were at Hartford hospital where they were born, I decided to walk over to the NICU to see if we could see our primary nurse they had while they were there for 7 weeks. Unfortunately she wasn't there, it would have been nice to show her how much they've grown and how far they've come since their days there. It would give me hope as a nurse to see your work with a patient have such positive outcomes.
I didn't think it would effect me walking up to the doors of the NICU, but as I did, it brought back so many memories. Those days were so bittersweet. I had these 2 babies that I had desperately wanted and I had to visit them daily in the hospital and watch them fight every day. Some days were better than others but it made being there seem all too real again. Usually when I look at them, those days seem so far away. But, being there again, it was all right there and seemed like it was yesterday. They do show me how strong they are on a daily basis to have started with such odds to overcome. Love them so much!!